Family Voices

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN. We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children. Our power as change agents, partners, and experts on our lives. A health justice approach to achieve health equity. Family- and person-centered care. The priority of our dignity, autonomy, and well-being. Including all of us equitably across race, ethnicity, class, culture, language, religion, disability, gender, sexual orientation, geographical location, and other characteristics. Our meaningful engagement in decision-making and advocacy. Authentic partnership and close collaboration across generations, communities, organizations, systems of care, and governments.
https://familyvoices.org